Association, Foundation and Non-Profit Resources
AARP (American Association of Retired Persons)
American Hospice Foundation
The AARP's website covers the organization's advocacy positions on a variety of elder topics including Social Security and Medicare. Helpful features include information on comparing Medigap insurance policies, information on Medicare, and the Benefits QuickLINK - online tools for finding public benefit programs throughout the U.S.
American Bar Association (ABA)
This website contains text of many ABA publications and information on the activities of the ABA's Commission on Legal Problems of the Elderly. Browse the Senior Lawyers Division, ABA Section of Real Property, Trust, and Estate Law, ABA Commission on Law and Aging pages for more resources.
Since its founding in 1980, the association has provided nearly $140 million to support research into the prevention, treatment and eventual cure for Alzheimer's. Its nationwide network of chapters offer frontline support to individuals affected by Alzheimer's through 24/7 information and referral services, and education and support groups. Check out their Dementia and Driving Resource Center for signs of unsafe driving, tips on having the conversation, and video vignettes illustrating supportive conversations taking place in four different situations.
American College of Trust and Estate Counsel
ACTEC is a professional association consisting of approximately 2,700 lawyers from throughout the United States. Members are invited to join based upon their professional reputation and ability in the fields of trusts and estates.
This organization provides information and supports programs for terminally ill and grieving individuals, their families, and the professionals who care for them.
American Society of Bioethics and Humanities
The purpose of ASBH is to promote the exchange of ideas and foster scholarship, research, teaching, policy development, professional development, and collegiality among people engaged in all endeavors related to clinical and academic bioethics and the health-related humanities.
Center for Medicare Advocacy
CMA is a private, not-for-profit organization that produces a wide array of written materials to assist Medicare beneficiaries and their advocates including self-help packets, brochures, and a quarterly newsletter. Additionally, CMA is involved in education, policy making, and litigation impacting Medicare beneficiaries throughout the country.
Consumer Financial Protection Bureau
The Consumer Financial Protection Bureau (CFPB) Office for Older Americans released four easy-to-understand booklets to help financial caregivers. The Managing Someone Else’s Money guides are for agents under powers of attorney, court-appointed guardians, trustees, and government benefit fiduciaries (Social Security representative payees and VA fiduciaries).
The guides help people acting as fiduciaries in three ways:
- They walk them through their duties.
- They tell them how to watch out for scams and financial exploitation, and what to do if their loved one is a victim.
- They tell them where to go for help.
The Criminal Justice Policy Foundation
CJPF is a private, non-profit educational organization that promotes solutions to problems facing the criminal justice system. The organization assists policy makers, criminal justice professionals, and the public by disseminating information about preventing crime and improving the quality of justice through education programs, publications, and the media.
Elder Justice Coalition
The Elder Justice Coalition was formally launched on February 10, 2003, to coincide with the introduction of the Elder Justice Act (S. 333), which was introduced by Sens. John Breaux and Orrin Hatch. The Coalition has five founding organizational members: the National Committee for the Prevention of Elder Abuse (NCPEA), the National Academy of Elder Law Attorneys, Inc. (NAELA), the National Association of State Units on Aging (NASUA), the National Association of Adult Protective Service Administrators (NAAPSA), and the National Association of State Long-Term Care Ombudsman Programs (NASOP).
Families USA Foundation is a national non-profit organization dedicated to the achievement of high-quality, affordable health and long-term care for all Americans. This is a valuable site for those involved in advocacy at the legislative and regulatory levels and for those with legal problems with managed care or Medicaid.
The official geriatric nursing Web site of the American Nurses Association (ANA) - It was developed through the Nurse Competence in Aging initiative to provide information regarding nursing care of older adults.
Hartford Institute for Geriatric Nursing
The Hartford Institute seeks to shape the quality of health care older Americans receive by promoting the highest level of geriatric competence in all nurses. By raising the standards of nursing care, the Hartford Institute aims to ensure that people age with optimal function, comfort and dignity.
The Hospice Patients Alliance (HPA)
HPA is a private non-profit charitable corporation dedicated to serving the general public, hospice patients, their families/caregivers, the bereaved and hospice staff. HPA promotes quality hospice services whether a patient is enrolled in a licensed hospice, residing at home, or in a facility.
MedicareNewsWatch.com is dedicated to helping seniors make informed decisions about Medicare Advantage plans.
The Medicare Rights Center
This not-for-profit organization is dedicated to ensuring that older adults and people with disabilities receive quality, affordable health care. The website offers helpful and reliable Medicare information for professionals in the health care field.
National Alliance for the Mentally Ill (NAMI)
With more than 210,000 members, NAMI is the nation's leading grassroots advocacy organization solely dedicated to improving the lives of persons with severe mental illnesses including schizophrenia, bipolar disorder (manic-depressive illness), major depression, obsessive-compulsive disorder, and severe anxiety disorders.
The National Association of Professional Geriatric Care Managers (GCM)
This organization is dedicated to the development, advancement, and promotion of humane and dignified social, psychological, and health care for the elderly and their families through counseling, treatment, and the delivery of concrete services by qualified, certified providers.
National Association of Senior Move Managers
This association is an established group of professionals who specialize in facilitating a smooth transition for seniors moving from the home into a senior housing community.
National Clearinghouse for Long Term Care Information
The U.S. Department of Health and Human Services developed this website to provide information and resources to help you and your family plan for future long-term care (LTC) needs.
National Committee for the Prevention of Elder Abuse
The National Committee for the Prevention of Elder Abuse (NCPEA) is an association of researchers, practitioners, educators, and advocates dedicated to protecting the safety, security, and dignity of America's most vulnerable citizens.
The National Consumer Voice for Quality Long-Term Care (Formerly NCCNHC)
The organization was formed as NCCNHR (National Citizens' Coalition for Nursing Home Reform) in 1975 because of public concern about substandard care in nursing homes. The Consumer Voice's mission is to represent consumers at the national level for quality long-term care, services, and supports.
National Family Caregivers Association
The National Family Caregivers Association offers services in the areas
of information and education, support and validation, and public
awareness and advocacy, toward the goal of minimizing the disparity
between a caregiver's quality of life and that of mainstream Americans.
National Guardianship Association
The mission of the National Guardianship Association is to provide educational training and networking opportunities for guardians; to promote the highest levels of values, standards and ethics; and to ensure a nationally recognized standard of excellence.
National Health Law Project (NHeLP)
NHeLP is a national organization providing health care advocacy for low-income people. It provides litigation support, training and consulting services, and detailed analysis of current and proposed legislation.
National Multiple Sclerosis Society
The National MS Society is a collective of passionate individuals who want to do something about MS now—to move together toward a world free of multiple sclerosis. The Society helps people affected by MS by funding cutting-edge research, driving change through advocacy, facilitating professional education, and providing programs and services that help people with MS and their families move their lives forward.
National Organization of Social Security Claimants Representatives (NOSSCR)
NOSSCR is the national support organization for attorneys specializing in Social Security disability law. The site features basic information on the law and the organization. Some materials are available only to members.
National Parkinson Foundation
This website is a useful resource for patients, caregivers, and professionals.
National Partnership for Women & Families (NPWF)
The National Partnership hosts a special section on caregiving which has information on important federal laws that can help caregivers; helpful articles on a range of caregiving issues, from how to prepare for the possibility of caregiving to what to do when the job suddenly falls on your shoulders; links to research on caregiving; and a resource section that highlights other sites.
National Private Duty Association (NPDA)
NPDA is the nation's first association for providers of private duty home care, which includes non-medical home care services. NPDA seeks to enhance the strength and professionalism of private duty home care providers through education and development of best practices.
National Senior Citizens Law Center (NSCLC)
NSCLC advocates nationwide on behalf of low-income elderly individuals and persons with disabilities. It provides litigation assistance, research and consulting support, national policy representation, training and manuals and periodicals. Substantive areas covered on the site include: Age Discrimination, Americans with Disabilities Act, Medicaid, Medicare, Nursing Homes, Older Americans Act, Pension Rights and Social Security.
Parkinson's Resource Organization
Parkinson's Resource Organization is a non-profit, charitable organization that provides group and individual support to those making the journey through Parkinson's.
State Bar Associations
Locate pro bono legal services by state.
The Synergy Summit is a nonprofit collaboration among the leadership of the major accounting, legal, and financial service organizations in the United States. Together, these groups represent more than 200,000 lawyers, accountants, financial advisors, philanthropic gift planners, and insurance and other professionals. Synergy Summit helps bring quality estate, financial, and charitable planning information and services to the public through multidisciplinary partnerships and projects.
Programs and public education projects supported by Synergy Summit include:
Trial Lawyers for Public Justice (TLPJ)
TLPJ is the only public interest law firm dedicated to using trial lawyers' skills and resources to advance the public good. Founded in 1982 at Ralph Nader's urging, TLPJ utilizes a network of the nation's outstanding trial lawyers to pursue precedent-setting and socially significant litigation. TLPJ has a wide-ranging litigation docket in the areas of toxic torts, environmental protection, consumer rights, worker safety, civil rights and liberties, and access to the civil justice system. TLPJ is the principal project of The TLPJ Foundation, a not-for-profit foundation and membership organization with over 2,700 members.
Last updated November 5, 2013